Online videos dedicated to each rare disease
EwenFlix is an on-demand video plateform for people affected by rare diseases and their family. Find on EwenFlix testimonies of patients, family or health professionals to better understand and live with rare diseases.EwenFlix is Here
Who are wE ?
EwenLife Rare Diseases wants to give the best of digital technologies to rare diseases patients and their helpers
EwenFlix Rare DiseasesTo break the patients solitude, EwenLife created a video plateform dedicated to rare diseases. On this plateform named EwenFlix EwenFlix (https://app.ewenlife.org), there is :
- Small explanatory videos of the disease to share.
- Testimonies of patients affected by rare disease
- Videos to help with your administrative process.
- Association’s members interviews.
- Interviews of professionals(psychologist, lawyer…)
The Ewen Community
An Ewen is a patient affected by rare disease or a close relation. He/She testifies on videos of his/her everyday life on EwenFlix. He/She also gives advice to live in the best condition possible with his/her rare disease. Ewens have the mission to create together a content. A content which ends solitude and the lack of understanding of rare diseases.
A reknown technical expertise with close experience to the rare disease
We are a close team of 25 volunteers. We have a high expertise known in data security, networks resilience, project management and communication.
We are also 5 facing rare disease everyday. This double skill allows us to work efficiently for 2 years with patients associations, rare diseases experts and institutions.
Julie Chin a Fon