Become EWEN, share your experience with the rare disease

  EwenLife wants to make the most of digital technology for rare disease patients and their caregivers. Notably through its video-on-demand platform: the Ewenflix. An "Ewen" is a person with a rare disease who wishes to testify about his daily life. Being an Ewen is becoming a kind of "youtuber" of the rare disease, our…
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