Month: March 2021

Ewenlife Rare Diseases Organisation

New patient stories: Molar Pregnancies and Sickle Cell Anemia

2 new Ewen stories are available on our video platform and our YouTube Channel: Laure on molar pregnancies Laetitia on sickle cell anemia Laure – Molar Pregnancies The episodes from Laure’s interview on molar pregnancies and trophoblastic diseases is now available on our YouTube channel. In her interview, Laure talks about her miscarriages, the judgements she…
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New patient stories: CFC Syndrome and Phenylketonuria

2 new Ewen stories are available on our video platform and our YouTube Channel: Djamila and Stéphane talk about CFC Syndrom and rare handicap, Amélie, Geraldine and Blaise talk about phenylketonuria Djamila and Stéphane – CFC Syndrom The episodes on Djamila and Stéphane’s story are out now. In their interview, they tell how they adapt their daily life…
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