The new EwenLife series is coming: dedicated to young people but not only …

Ewenlife Rare Diseases Organisation

The new EwenLife series is coming: dedicated to young people but not only …

The new EwenLife series is coming!
In response to the many young people who contacted us during the lockdown. Because why, in 1 year, research has found for Covid? And why research does not find for their rare diseases?

Treat me, are you thinking about it? And when is my treatment?

During the first confinement, we measured on our sites, a very active search for testimonials on gene therapies, messenger RNA, … research in general.
🍎Southy teenagers and adults contacted us to share their dismay at the lack of progress in research on their disease, while COVID vaccines were announced within a few months!
🍎Their remarks showed a lot of confusion in understanding the research. There was clearly a problem of access to information, and we chose to address it as part of a special research web series for young people.

🍎🍎🍎The slogan of this new web series: "Treat me, are you thinking about it? And when is my treatment? »

🍎 Like the demands of the young people who contacted us during the confinement.

🍎It is these two questions that will guide the topics covered in the ELDécode web series. From September 4th on our platform(https://app.ewenlife.org)and YouTube!


 

More testimonials soon on the EwenLife platform

 

EwenLife is a united team of volunteers who are committed to rare disease patients and their loved ones. 

To support us, subscribe to our YouTube channel: https://www.youtube.com/c/ewenliferaredisease

or check out our platform: https://app.ewenlife.org

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