The new EwenLife series is coming: dedicated to young people but not only …
Treat me, are you thinking about it? And when is my treatment?
During the first confinement, we measured on our sites, a very active search for testimonials on gene therapies, messenger RNA, … research in general.
🍎Southy teenagers and adults contacted us to share their dismay at the lack of progress in research on their disease, while COVID vaccines were announced within a few months!
🍎Their remarks showed a lot of confusion in understanding the research. There was clearly a problem of access to information, and we chose to address it as part of a special research web series for young people.
🍎🍎🍎The slogan of this new web series: "Treat me, are you thinking about it? And when is my treatment? »
🍎 Like the demands of the young people who contacted us during the confinement.
🍎It is these two questions that will guide the topics covered in the ELDécode web series. From September 4th on our platform(https://app.ewenlife.org)and YouTube!
EwenLife is a united team of volunteers who are committed to rare disease patients and their loved ones.
To support us, subscribe to our YouTube channel: https://www.youtube.com/c/ewenliferaredisease
or check out our platform: https://app.ewenlife.org