New patient stories: Molar Pregnancies and Sickle Cell Anemia

Ewenlife Rare Diseases Organisation

New patient stories: Molar Pregnancies and Sickle Cell Anemia

2 new Ewen stories are available on our video platform and our YouTube Channel:
Laure on molar pregnancies
Laetitia on sickle cell anemia


Laure – Molar Pregnancies

The episodes from Laure’s interview on molar pregnancies and trophoblastic diseases is now available on our YouTube channel. In her interview, Laure talks about her miscarriages, the judgements she faced due to her repeated molar pregnancies, and her feelings of loss, but also her feelings of joy and hope found thanks to medically assisted procreation (MAP).

 To watch all the episode from Laure’s interview on molar pregnancies, click here: https://bit.ly/3ot5Yc9

Don’t forget to turn on the subtitles!

You can also check out our successful web series on guilt and Rare Disease here: https://bit.ly/3lMUvUL

To learn more about Laure’s association for trophoblastic diseases: ASMT

Volunteers for this patient story:
Interviewer: Sonia
Observer: Lise
Video editing montage: Estelle


Laetitia – Sickle Cell Anemia

Laetitia’s interview episodes are now online. On YouTube or our platform you’ll find her videos where she talks about her experiences, shares her tips and her advice on how to live better with sickle cell anemia and osteonecrosis.

Laetitia’s interview on living with sickle cell anemia can be watched here: https://bit.ly/2OVdhO4

 Don’t forget to turn on the subtitles!

Laetitia is an expert patient, co-founder of the Drépacare app. In her interview Laetitia tells us about her childhood, her move to France in order to be treated for her sickle cell anemia and her osteonecrosis, and much more.

You can also check out our successful web series on guilt and Rare Disease here: https://bit.ly/3lMUvUL

To find out more about Drépacare : https://www.drepacare.com/

Volunteers for this patient story:
Interviewer: Sonia
Observer: Sébastien
Video editing montage: Éloise


 

More video stories soon to be on the EwenLife platform and YouTube channel

EwenLife is a united team of volunteers who engage with rare disease patients and their loved ones. 

To support us, subscribe to our Youtube channel: https://www.youtube.com/c/ewenliferaredisease

or check out our platform: https://app.ewenlife.org

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