New testimonial: Atypical Rett syndrome

Ewenlife Rare Diseases Organisation

New testimonial: Atypical Rett syndrome

1 new testimonial from Ewen is available on our video platform:
Nicolas on his daughter's Rett Syndrome

Nicolas – Atypical Rett syndrome

Finally a father's testimony! Episodes of Nicolas' testimony on his daughter's atypical Rett syndrome are available on our YouTube channel and on our EwenLife platform.

In his testimony he tells us about the pathology and the polyhandicap of his daughter, his vision of his role as a father, the couple and the siblings … And especially how he and his wife decided not to revolve around illness anddisability!
All of Nicolas' testimony about Rett syndrome is here:
To review our series on guilt and rare disease, it's here:
Volunteers for this testimony:
Interviewer: Rosa
Editor: Estelle


More testimonials soon on the EwenLife platform


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