New testimonial: Syndrome Charge

Ewenlife Rare Diseases Organisation

New testimonial: Syndrome Charge

1 new testimonial from Ewen is available on our video platform:
Nathalie and Julien on the Syndrome Charge

Nathalie and Julien – Syndrome Charge

The episodes of Nathalie and Julien's testimony on the Charge syndrome are available on our YouTube channel and on our platform.

In their testimony, Nathalie talks about managing her schedule as a minister, since Julien's illness was diagnosed. And both speak about the impact of the syndrome on school and professional life. A mother-son testimony full of humor!
Julien and Nathalie's testimony on charge syndrome is here: https://bit.ly/38BQblN
To review our series on guilt and rare disease, it's here: https://bit.ly/3o2iCiA
Nathalie's association on Charge syndrome:
Volunteers for this testimony:
Interviewer: Mélanie
Editor: Laurianne, Lise

 

More testimonials soon on the EwenLife platform

 

EwenLife is a united team of volunteers who are committed to rare disease patients and their loved ones. 

To support us, subscribe to our YouTube channel: https://www.youtube.com/c/ewenliferaredisease

or check out our platform: https://app.ewenlife.org

Devenir Bénévole

Leave a Reply

Your email address will not be published. Required fields are marked *