New testimonial: Syndrome Charge

Ewenlife Rare Diseases Organisation

New testimonial: Syndrome Charge

1 new testimonial from Ewen is available on our video platform:
Nathalie and Julien on the Syndrome Charge

Nathalie and Julien – Syndrome Charge

The episodes of Nathalie and Julien's testimony on the Charge syndrome are available on our YouTube channel and on our platform.

In their testimony, Nathalie talks about managing her schedule as a minister, since Julien's illness was diagnosed. And both speak about the impact of the syndrome on school and professional life. A mother-son testimony full of humor!
Julien and Nathalie's testimony on charge syndrome is here:
To review our series on guilt and rare disease, it's here:
Nathalie's association on Charge syndrome:
Volunteers for this testimony:
Interviewer: Mélanie
Editor: Laurianne, Lise


More testimonials soon on the EwenLife platform


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