1 new Ewen story is available on yourTube and our video platform:
Christine on Tetrasomy X
Christine – Tetrasomy X
The episodes of Christine’s video story on Tetrasomy X or Syndrome 48XXXX are available on our YouTube channel and on our platform.
In her story, Christine talks about her daughter’s disease and disability and its impact on a daily basis. Relationship with the medical profession, family and school impact, importance of preparing well for the announcement of the diagnosis … Christine transmits a maximum of her knowledge about life with Tetrasomy X
Christine’s non profit for patients with rare diseases in Switzerland:
Volunteers for this testimony:
Editor: Sonia and Estelle
More video stories soon on EwenLife YouTube and platform
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