New Testimonials: Ehler Danlos, Arterio-Venous Malformation, Rendu Osler Weber

Ewenlife Rare Diseases Organisation

New Testimonials: Ehler Danlos, Arterio-Venous Malformation, Rendu Osler Weber

3 new Ewens testimonials are available on our video platform: Aurélie with Ehler Danlos Hypermobile, Beatrice with arterio-venous malformations, Souleya and Saliha with Rendu Osler

Aurélie – Hypermobile Ehler Danlos  

Syndrome

👓She approaches #Childbirth, #job, #dance, #travelling .
😁For fun, the ep14 on its #van #magique.
👉🏼To review our series on #guilt and #raredisease it‘s here: https://bit.ly/3o2iCiA

Beatrice – Arterio-venous malformation

The Ewens bookstore – Gaspard welcomes Béatrice Aubert
Beatrice was the victim of a stroke at the age of 15, due to an arterio-venous malformation.
When she wakes up from the #coma, she can’t remember who her family is and who she is. Fifteen years later, she wrote her first #book “My life is a surprise”.
To give #hope to all those who go through the test of #MAV, #stroke or #anevrism

https://fb.watch/2IQ5Knk2Aq/

Souleya and Saliha – Rendu Osler Weber Disease

All episodes of Souleya and Saliha’s testimony on #renduosler on EwenFlix: https://app.ewenlife.org/app/fr/list?disease=rendu-osler
#goodmood warranty
Also go see videos useful to all rare diseases: https://app.ewenlife.org

More stories soon on the EwenLife platform

EwenLife is a united team of volunteers who engage with rare disease patients and their loved ones. 

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