Thank you for running with families affected by rare disease and disability

Ewenlife Rare Diseases Organisation

Thank you for running with families affected by rare disease and disability

On June 12 and 13, the EwenLife virtual run/walk took place to raise awareness about isolation related to rare diseases and disabilities

Thank you for running with them

Thank you to everyone who participated in the EwenLife virtual solidarity run/walk to raise awareness about the isolation of families affected by rare disease and disability.
We wanted to show all of you in the picture. But you are too many.
So we will admit it: this race was due to be in small committee. But as it leaked on social networks, we assumed and we did it in real life. And it was awesome! Great to have you all around us.
We come back at the end of April with a new race over several distances: 10m/100m/2km/6km/12km/20km.
And promised, this time we warn you in advance so that you can all register.
Check our social networks regularly for the date!!!!!
To review our series on guilt and rare disease, it’s here: https://bit.ly/3o2iCiA

More patient stories soon on the EwenLife platform

EwenLife is a united team of volunteers who are committed to rare disease patients and their loved ones. 

To support us, subscribe to our YouTube channel: https://www.youtube.com/c/ewenliferaredisease

or check out our platform: https://app.ewenlife.org

Devenir Bénévole

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